Event Date:
Thursday, November 5, 2020 - 4:00pm to 6:00pm
Target Audience – Patients who would benefit from understanding how best to navigate the complex health system and be made aware of the supportive services available to help them coordinate care. Providers to understand the challenges that patients face. From disciplines of rare disease such as melanoma, brain cancers, and sarcoma among others.
Goals – In alignment with the Dan McMenamin Endowment (DME) mission, the event strives to foster cooperation among patients, physicians, and researchers by educating patients on the complexities of collaborative care and offering resources to guide the patient in making informed decisions about their care. The target audience for the event is patients and caregivers of those diagnosed with or have the potential for diagnosis of rare cancers. Physicians and researchers in the rare disease space will also be encouraged to attend to hear directly from patients/caregivers and improve their knowledge of patient-centric care.
Event Program:
Opening Remarks & Introductions
Antonio P. DeRosa (WCM) will provide an overview of the event and opening remarks
“Dancing with Uncertainty: Important Decisions & Limited Information”
Dr. Guy Maytal (WCM) speaking on psychosocial aspects of genetic testing
“Genetics, Genomics, Family History and Cancer”
Dr. Nicolas Robine (New York Genome Center) speaking on genomic testing and family history of disease
“It may not be rare, but it is no less significant”
Ms. Nila Charles (Patient Advisor – NYP/WCM Cancer Center PFAC) speaking on the patient perspective with genetic testing
Panel Discussion and Q&A
Moderated by Dr. Andrea Betesh (WCM) and Michelle Primiano (WCM) from the Clinical Cancer Genetics team